SIGENP Società italiana Gastroenterologia Epatologia e nutrizione pediatrica

SIGENP IBD Register

SIGENP IBD: Italian Group for the study of Gastroenterology, Epatology and Pediatric Nutrition

The IBD in Children and Adolescents in Italy: Data from the Pediatric National IBD Register are registered in the Disease Log package.

CLINICAL SIGNS COLLECTION
Remote data entry facilities for data collection of data in specifically configured registry pages designed as for the pediatric Infiammatory Bowel Disease scope, purpose and protocolsregistry scope, purpose and protocols:

  • Demographic profile and familiarity
  • Anamnesys record and disease onset details
  • Outpatient visits details
  • Therapy details and history
  • Complications and surgery
  • Biohumoral examination records
  • Medical examinations reports

REPORTS AND DATA EXPORT
Printable reports and data export tools allow a further third party analysis of the collected data

PRIVACY AND SECURITY
Privacy and security procedures in place for the confidentiality preservation